Hands, Feet, and a Whole Lotta Sass: My Life with Seronegative RA
It started innocently enough. A little ache in my fingers here, a weird twinge in my toes there. I chalked it up to “getting older,” even though I’m still young enough to be carded for wine on a good day and have a dance party in the kitchen with zero shame.
But then my hands started staging full-blown protests. My feet followed. And suddenly, I was walking like I’d just wrestled a porcupine in flip-flops and trying to open jars like I was defusing a bomb.
So I did the responsible adult thing: I asked Dr. Google.
Mistake.
By the end of the night, I was convinced I had 14 rare diseases and a demon living in my pinky toe.
Enter: doctors, tests, more tests, and—drumroll please—lab results that looked perfect. “You’re totally fine!” they said, while my fingers were practically whispering, “We’d like to formally resign.”
The Diagnosis: Seronegative Rheumatoid Arthritis (a.k.a. Medical Hide and Seek)
Apparently, my immune system decided to skip the classic RA markers and go rogue. So instead of testing positive for things like rheumatoid factor or anti-CCP, my labs were like, “We don’t see a problem here.” Meanwhile, my hands were playing a symphony of creaks and my feet felt like I’d walked across a gravel driveway made of Lego bricks.
The Daily Reality
Here’s what living with seronegative RA in my hands and feet feels like:
- Buttons? Zippers? Shoelaces? Adorable. Tell me more about your magical dexterity.
- Walking barefoot across the house? More like tiptoeing across a lava field.
- Shaking hands? Only if you want to witness me flinch like you just offered me a live eel.
Opening jars has become a full-body workout. Typing? A game of “Which Finger Still Works Today?” And don’t get me started on shoelaces. If I could Velcro everything in my life, I would. Including relationships.
Things I’ve Said Out Loud Without Shame:
- “My finger is broken. No, I didn’t injure it. It just…woke up like this.”
- “No, I’m not limping. That’s just my arthritis swagger.”
- “I’d love to help carry that! Just kidding. I’m delicate now.”
Silver Linings (Because Humor > Hopelessness)
- Built-in excuses. “Oh, you wanted me to help move that couch? Sorry, my pinky toe says no.”
- Unintended fashion perks. I get to wear toeless compression socks and fingerless compression gloves all the time. It’s called therapeutic styling.
- A masterclass in creative problem-solving. Can’t grip a mug? Two hands. Can’t type fast? Voice dictation. Can’t walk far? Strategic shuffling—it’s a vibe.
And honestly, if my hands and feet are going to be high-maintenance, I might as well treat them like the divas they are. Heating pad? You got it. Hot showers just to have the hot water run over them? Yes, queen. Special heated vibrating gloves? Let’s go full-on hand spa.
Final Thoughts (Typed Slowly, With Feeling)
Having seronegative RA in just my hands and feet might seem “not so bad” on paper. But when your entire life involves typing, texting, walking, standing, holding coffee (very important), and giving people thumbs up for no reason—it’s kind of a big deal.
Still, I’m learning to laugh through it. To adjust. To treat every sock-wearing, typing, walking day as a tiny victory. Because some days my feet feel like they were made by IKEA—fragile, complex, and prone to falling apart. But other days? Other days I dance in my kitchen anyway.
Even if it’s barefoot and slightly wobbly.
